Advancing Caregiver Health for those supporting Solid Organ Transplant Candidates and Recipients: Building Consensus and Research Priorities
Caring for individuals who are solid organ transplant candidates or recipients places a heavy burden on informal caregivers, often resulting in stress, fatigue, and poor health for the caregiver. Furthermore, these unpaid caregivers are the backbone of the system with an estimated $30 to $40 billion of free caregiving a year nationally in Canada.
This proposal aims to fund three to four 2-hour workshops in partnership with CDTRP to foster a national collaboration among clinicians, researchers, community partners, caregivers and patient representatives. The goal is to
Identify service gaps and co-design a robust plan for future support programs and research for caregiving and support of those with solid organ transplantation.
Key deliverables will include discussions on best practices, identifying a short list of fundable, multi-site research projects, and establishing a national network for caregiver support and well-being.
