Research Hub

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The Research Hub is your go-to source for easy-to-understand updates on donation and transplant research supported by the Canadian Donation and Transplantation Research Program. The Hub provides plain-language summaries so patients, families, donors, and the public can stay informed, engaged, and empowered by the latest discoveries shaping care and outcomes in donation and transplantation.

Patient, Caregiver, and Provider Perspectives on Improving Provider-Patient Interactions in Hemodialysis: A Qualitative Study

The objective of this article is to describe the challenges and proposed solutions to improving interactions between health care providers and patients undergoing facility-based hemodialysis as identified by people receiving hemodialysis, their caregivers, and health care providers.

Patient, Caregiver, and Provider Perspectives on Improving Provider-Patient Interactions in Hemodialysis: A Qualitative Study

Background:

Improving interactions between people receiving hemodialysis and health care providers of facility-based hemodialysis care is a top priority for patients, caregivers, and health care providers.

Objective:

To identify challenges for high-quality clinical interactions in facility…

HELP-KIDNEY: Health Literacy and Patient Outcomes in Pediatric Kidney Transplant

Many people have difficulty understanding health information, and this can lead to worse health outcomes. After a kidney transplant, patients and families need to understand medical instructions and make important decisions about care. Until now, no studies have looked at how understanding health i…

The association between neighbourhood marginalization and SARS-CoV-2 outcomes in patients presenting to emergency departments

Improving healthcare and fixing system problems requires addressing health equity. If health equity is ignored, efforts to improve quality can unintentionally make gaps between groups even worse and may fail to improve health for everyone. To improve health outcomes, we must understand the social d…

Understanding the work-related challenges of organ and tissue donation coordinators during the COVID-19 pandemic: a mixed-method study

This study aimed to explore the perceptions of donation coordinators in Canada and understand how the COVID-19 pandemic impacted their work activities.

Genetic Assessment of Living Kidney Transplant Donors: A Survey of Canadian Practices

Genetic testing of potential living kidney donors (LKDs) may improve risk assessment and inform the safety of donation. The strategies to evaluate these donors are still evolving. In Canada, little is known about the practice of assessing for genetic conditions among LKDs.

The aim of this study wa…

Perspectives on Conducting Behavioral Intervention With Adolescents Using a Virtual Platform—A Thematic Analysis From the Viewpoint of Study Coordinators

The present study aimed to understand study coordinators' perspectives on conducting a behavioral intervention with adolescent kidney transplant recipients using virtual conferencing platforms.

Text messaging to improve connection between adolescents and their health care providers

The study aimed to (1) to implement a text message platform to increase communication between adolescent patients and health care provider (HCP); (2) to evaluate its effect on quality of life, symptom burden, and patient engagement; and (3) to determine patient satisfaction with the platform.

Implementation of a Kidney Genetic Service Into the Diagnostic Pathway for Patients With Chronic Kidney Disease in Canada

Genetic causes are responsible for about 10–20% of chronic kidney disease. Genetic testing can help confirm whether a person’s kidney disease has a genetic cause, but it has not yet been widely used in routine care. This is largely because existing evidence comes from small studies, selective group…

Exploring educational and training approaches for organ and tissue donation coordinators: A scoping review

Organ and tissue donation coordinators often have limited training leading to reduced service quality and increased work-related stress. Understanding the existing educational strategies and training methods is crucial for supporting their professional development.

The puropose of this study is to…

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