Resources
This session describes the concept of gender-affirming public health and positions 2SLGBTQI+ health equity as a public health priority. An overview of literature related to the roots of health inequities and key priority issues experienced by 2SLGBTQI+ people is shared. Opportunities for and exampl…
As territory acknowledgements become more common place, and are often prescribed and pre-scripted, they run the risk of becoming a token gesture rather than a meaningful practice. This guide will answer some common questions around why and how to acknowledge traditional First Nations territories in…
The Public and Patient Engagement Lunchtime Learning series introduces participants to the principles of public and patient engagement in health research. Participants will learn how to build meaningful partnerships between researchers and people with lived experience to inform decision-making and …
In the United States, the Latinx community, especially those that are undocumented, face significant barriers in healthcare. In this conversation, we will establish a foundational understanding of the Hispanic culture, values, and beliefs and discuss the ethical paradox Latinx people face when it c…
The online tutorial CORE-2022 (Course on Research Ethics) is an introduction to the TCPS for the research community. It focuses on the TCPS ethics guidance that is applicable to all research involving human participants, regardless of discipline or methodology.
Through this toolkit, Clinical Trials Ontario aims to help its community in their efforts to improve clinical trial participants’ experiences. The goal is to help clinical trial participants feel informed and valued. In briefly reviewing the literature, the topic areas highlighted in the toolkit ar…
The CHILD-BRIGHT Network Patient-Oriented Research Toolkit provides practical guidance for child health researchers on meaningfully engaging partners with lived and living experience (PWLEs)* throughout the research cycle. By bringing together best practices in POR, offering clear explanations and …
When it comes to data analysis and the interpretation of findings, patient-partners are less frequently engaged in the process.
In this session, the CHILD-BRIGHT Network adopts a co-learning approach and explore how to promote authentic patient participation in this area. Participants explore sev…
In this session hosted by CHILD-BRIGHT Network, they provide an overview of a select number of resources aimed at developing capacity in patient-oriented research and outline the benefits & drawbacks of each.
Equity, diversity, and inclusion (EDI) are foundational to effective, impactful and sustainable health research. EDI considerations ensure that:
This webinar is intended for a broad audience with an interest in ethics and patient engagement in health research including patient partners, researchers, Research Ethics Board members, health care professionals, decision-makers and trainees.
The webinar was hosted by the NL Support Unit.
This framework explains principles and practices for promoting equity in patient-oriented research, and the equity-related requirements for researchers working with the Ontario SPOR SUPPORT Unit (OSSU). This document also describes resources and services that the OSSU can provide researchers. The f…
Closing the loop is an essential component in successful engagements because patient partners share personal experiences and spend time and energy in engagement opportunities. It’s crucial to inform them of how their participation contributed to the objective or end-result after, and ideally throug…
Have you ever wondered how to engage with Indigenous perspectives in health care? 8 Cultural Safety Principles arose from a circle with Indigenous legacy leaders from across the province of BC. This collaborative experience has had success in breaking down cultural safety so that it’s easier to und…
This guidance has been compiled for a wide audience, but in particular it will be of value to:
This guidance is for patients, carers and members of the public thinking about getting actively involved in research and who are being offered expenses, or payment for involvement, or both. It offers answers to some frequently asked questions and suggests where you might get advice about your parti…
