Ressources
If you’re on a research team as a patient partner providing your lived experience, you might be asked to review a manuscript before it’s submitted to a journal to be considered for publication. This resources provides tips for patient partners to consider when reviewing a manuscript.
Accessibility should be an important part of engaging patient partners in any research project or initiative, and especially in a conference designed by and for patient partners. PXP shares how the work to develop the accessibility checklist for virtual conferences was developed collaboratively, al…
This resource has been co-created by patient partners based on their own experiences related to Letters of Support. PXP has created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
1. Reviewing some foundationa…
Co-Created by Dawn Richards and Jim Kempster with input from CIHR-IMHA PERA members/Par Dawn Richards et Jim Kempster, avec la contribution d’ambassadeurs de la recherche axée sur le patient de l’IALA des IRSC
Scientific papers have a very specific layout. Often each journal that publishes papers …
Patient engagement is attracting considerable interest as a potential strategy to improve the conduct of clinical trials, with evidence of significant improvement in research participant recruitment. However, impact on the retention and adherence of clinical trial participants requires …
Webinar presented by Maureen Smith & Andrea Chow about supporting patient partners in the CIHR grant application process.
Looking to make research more accessible? Check out this helpful resource from SPOR Evidence Alliance on crafting Plain Language Summaries (PLS)! This one-pager provides key tips for making research findings clear and understandable for all audiences
These proposed steps were developed by combinin…
Topic: Patient Partner Perspectives on Barriers and Facilitators to Patient Engagement in Research Speakers: Alex Haagaard, Francine Buchanan, and Jim Mann Moderator: Linda Niksic This webinar was hosted in February 2025
Join Manuel Escoto, PFD Partnerships Manager at CDTRP, and Kristi Coldwell, Senior Advisor at TRFBC, as they offer valuable insights for Innovation Grant applicants in crafting their PFD engagement plans. This video provides an overview of essential PFD engagement principles and offers actionable s…
The Introduction to Knowledge Translation in Patient-Oriented Research eLearning module will introduce the basics of KT - what it entails, its purpose in moving evidence into action, the benefits of effective KT, and how patient partners can play a role in the process.
Peer review is a key step in the evaluation of research projects to ensure that they represent feasible, ethical, and applicable projects that are well positioned to result in success.
The Kidney Foundation of Canada has recently been a driver in the creation of a People with Lived Experience Pe…
The Indigenous Research Level of Engagement Tool (IRLET) aims to provide guidance to researchers and grant review committees who are involved in or are new to Indigenous research with guidelines on how to ensure a project proposal is being planned and executed in an appropriate manner.
The IRLET T…
LESSON ONE: THE ROLE OF COMMUNITY
Before jumping in to engagement techniques, we'll go over how the role of the community, and the relationship between community and those doing…
Repository of resources developed by the UK's National Institute for Health and Care Research.
A checklist of things to consider before opening recruitment for a research working group. This is one of ten resources we’ve produced to celebrate ten years of the McPin Foundation.
This resource explores what has been learned from organizations delivering patient and public involvement (PPI) in publicly funded studies, covering the roles and skills in PPI, the case for carrying out PPI work, and more.
Engagements, such as roundtables, working groups, committees, and councils, that include Persons With Lived Experience (PWLE) are becoming more common across governments and other sectors. Yet, engagements often focus on what the engager needs to achieve – and little focus is on understanding of th…
The PORLET measures how closely a project aligns with the definition of patient-oriented research as described by the CIHR Strategy for
Patient-Oriented Research.1-3 It assists grant review committees in evaluating patient-oriented research proposals, explains patient-oriented research to individua…
