Engagement des patients

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Indigenous Research Level of Engagement Tool

The Indigenous Research Level of Engagement Tool (IRLET) aims to provide guidance to researchers and grant review committees who are involved in or are new to Indigenous research with guidelines on how to ensure a project proposal is being planned and executed in an appropriate manner.

The IRLET T…

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Foundations of Community Engagement

This online course is designed to help you learn at your own pace as you work to build your community engagement toolkit.

LESSON ONE: THE ROLE OF COMMUNITY
Before jumping in to engagement techniques, we'll go over how the role of the community, and the relationship between community and those doing…

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Resources and Training: National Institute for Health and Care Research (UK)

Repository of resources developed by the UK's National Institute for Health and Care Research.

Documents

Research Involvemen Groups: Recruitment Plan Checklist

A checklist of things to consider before opening recruitment for a research working group. This is one of ten resources we’ve produced to celebrate ten years of the McPin Foundation.

Documents

Public involvement in mental health research: reflections and learning over 10 years

This resource explores what has been learned from organizations delivering patient and public involvement (PPI) in publicly funded studies, covering the roles and skills in PPI, the case for carrying out PPI work, and more.

Documents

Project Heart: A Collaborative Exploration of the Future of Engagement

Engagements, such as roundtables, working groups, committees, and councils, that include Persons With Lived Experience (PWLE) are becoming more common across governments and other sectors. Yet, engagements often focus on what the engager needs to achieve – and little focus is on understanding of th…

Documents

Patient-Oriented Research Level of Engagement Tool

The PORLET measures how closely a project aligns with the definition of patient-oriented research as described by the CIHR Strategy for 
Patient-Oriented Research.1-3 It assists grant review committees in evaluating patient-oriented research proposals, explains patient-oriented research to individua…

Documents

The Indigenous Research Level of Engagement Tool (IRLET)

The Indigenous Research Level of Engagement Tool (IRLET) measures the degree to which a given project meets 
patient-oriented research criteria in the context of Indigenous communities. The criteria evaluated in this tool include 
Partnership (Indigenous Stakeholders), Knowledge into Practice, Streng…

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Escape INTO Patient-Oriented Research (POR): A Virtual Escape Room Collaboration

The goal of the SCPOR Patient-Oriented Research Escape Room is to share the concept of patient-oriented research with individuals interested in health research.  It is increasingly important for health disciplines to work together to offer optimal patient care, especially in complex situations. Sim…

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PxP (For Patients, By Patients’) Resource Hub

PxP stands for ‘For Patients, By Patients

PxP is entirely led by an international team of experienced patient and public partners. Their mission is to bring resources, mentorship and community to other patient partners in any kind of health research, no matter their experiences as a patient partn…

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Inclusive Practices in Participatory or Partnership-based Research with Socially Excluded Persons

This guide is intended as an orientation tool for researchers whose objective is to strengthen the health system and improve populations health through partnerships with users, patients, lived experience experts, or community-based members or organizations, known as community partners (PFD Partners…

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Supporting Equity-centred Engagement

This guide was developed through a collaboration between the Public and Patient Engagement Collaborative (PPEC) and the Public Engagement in Health Policy (PEHP) Project at McMaster University.

Resources and tools were identified through a comprehensive search conducted between June and July 2022 …

Video

Comment publier un article? Pour les équipes de publication incluant les patients partenaires

Les patients et les partenaires publics jouent un rôle important dans la conception et la conduite de la recherche et sont de plus en plus impliqués dans le processus de publication, y compris en tant que co-auteurs. Cette vidéo présente le processus de publication aux patients et partenaires publi…

Video

How do I publish a paper? For publication teams including patient partners

Patient and public partners play important roles in the design and conduct of research, and are increasingly more involved in the publication process, including as co-authors. This video introduces the publication process to patient and public partners who are currently or planning to become public…

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Health Research Glossary

This glossary provides simple definitions for words and acronyms commonly used in health research, as well as a few of terms that are specific to the MSSU and the Maritimes.

Many of these definitions were adapted from glossaries created by the Canadian Institutes of Health Research (CIHR)INVOLVE…

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Terminologie de la pratique collaborative et du partenariat patient

Le Present document présente les definitions des principaux concepts fondateurs du partenariat patient en santé et services sociaux. Cette terminologie est le fruit du travail des patients et des professionnels (éducateurs et chercheurs)de l’Université de Montréal, principalement regroupés au Centr…

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Understanding Research

A website created to demystify research and provides resources such as video tutorials, a glossary of research terms, and a guide for reading research articles. The website is organised into the following sections:

  • An introduction to science, research, patient-oriented research, and participator…
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Introduction to Evidence Synthesis

Each year, researchers publish millions of new scientific articles. Given the large amount of information, it is hard to find out what is already known about any given health topic.

It is important to look at existing evidence before starting a new research project, or when considering a new polic…

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