Analysis of ableism in political discourse, health system communications, and health inequities among immunocompromised people in the context of COVID-19
- Logistics
- Virtual
- Anticipated time commitment
- 1-9 hours depending on activities selected
- Application deadline
- Type of Organ
- Heart, Kidney, Liver, Lung, Pancreas, Stemcell
- Opportunity Type
- Discussion Group
- Theme
- T5 - Restoring Long-Term Health
Government and health system policies can sometimes hurt people with long-term health issues.
This matters all the time but matters even more during times that transplant recipients and families have extra worries about their health. This includes times like COVID-19, flu, or measles outbreaks.
We are studying how politicians and their language shape pandemic policy decisions. This will help us understand how these policies arise and their impact.
We are also studying how communications from transplant programs meet the needs of transplant recipients from different walks of life.
Experience required
We are looking for individuals who have received a solid organ or stem cell transplant or are the family member/caregiver for someone who has had a transplant and who are willing to discuss the pandemic policies that had the greatest impact on them and their family, and their experiences with their transplant center.
Potential roles for PFD Partners
Activity 1: Help decide which pandemic-related policies our study should focus on. We want to study the policies that had the greatest impact on transplant recipients and their families.
You will be asked to:
- Attend three virtual Zoom meetings.
- Participants will share ideas, talk about them, and rank their importance.
- Each meeting will be 1-2 hours long.
- The total time commitment will be 7-8 hours, including meeting time and time to prepare and gather your thoughts.
Activity 2: Share your experiences in finding health information and communications from transplant centers
- We invite you to share your experiences on finding and using health information in an interview.
- You will also read an example email sent by a transplant center with vaccine advice and share your opinion of it.
- The interview will take approximately 1 hour and will be by Zoom or phone. You can do the interview in English, French, or Spanish.
Reimbursement
$200 for completing Activity 1 and $50 for Activity 2
How to get in touch
- Name
- Patricia Gongal
- Job title
- Executive Director, CDTRP
- Phone
- info@cdtrp.ca