Patient Engagement

Patient Engagement Opportunities > View Opportunity

Photo by S Migaj

Reclaim Series

Sylvia Okonofua
Black Donors Save Lives
Logistics
In person
Anticipated time commitment
2 hrs
Application deadline
Type of Organ
Heart, Kidney, Stemcell
Opportunity Type
Research Participant
Theme
T1 - Culture of Donation, T5 - Restoring Long-Term Health

Reclaim Series is a storytelling initiative led by Black Donors Save Lives. The series highlights the lived experiences of Black patients and families impacted by donation and transplantation including blood, stem cells, organs, and tissues. By centering Black voices, the project aims to advance health equity, strengthen trust, and inspire systemic change in Canada’s transplant and donation systems. We are seeking Black patients from the CDTRP community who have experienced transplantation, living or deceased donation, or long-term blood transfusion to share their stories. Participants will receive an honorarium in recognition of their time and contribution. These stories will be shared through multimedia formats (video, written, digital) to educate the public, healthcare professionals, and policymakers about the unique challenges and strengths within Black communities.

Experience required

We are seeking Black patients with lived experience of transplantation or donation, specifically those who have received a kidney or stem cell transplant, donated to a loved one, or undergone long-term blood transfusions. Their experience navigating the transplant or donation system, including the medical, emotional, and cultural dimensions, is essential to the Reclaim Series. We welcome individuals who can speak openly about their journey, including barriers and successes, in order to inform systemic change and strengthen trust within Black communities

Potential roles for PFD Partners

Participants will take part in a storytelling session (approx. 1–2 hours), where they will be interviewed and supported in shaping their narrative for the Reclaim Series. Their stories may be shared in video, written, or digital formats. We anticipate 3–5 partners for this phase, each committing to a single session with an optional follow-up for reviewing drafts before publication.

Reimbursement

$100

How to get in touch

Name
Sylvia Okonofua
Job title
Executive Director, Black Donors Save Lives
Email
Phone