Identifying and Addressing the Educational Needs of Patients from Marginalized Groups on Less-than-ideal Kidneys
- Logistics
- Virtual
- Anticipated time commitment
- 45 minutes
- Application deadline
- Type of Organ
- Kidney
- Opportunity Type
- Research Participant
- Theme
- T3 - Better Grafts, T5 - Restoring Long-Term Health
There are more patients waiting for a kidney transplant than available organs. Meanwhile, many deceased donor kidneys are not used and discarded, often because of the donor's age or underlying health conditions such as high blood pressure. While these kidneys are not expected to last as long as standard donor organs, expanding their use could benefit some patients and increase access to transplantation.
To participate in decision-making about organ offers, patients require educational tools that provide clear information in an accessible and respectful manner. To ensure such tools promote equitable access to kidney transplants, the input of patients from Indigenous and historically marginalized groups is crucial.
The purpose of this study is to gather perspectives from kidney transplant candidates and recipients, as well as caregivers, from Indigenous or historically marginalized groups, on the use of less-than-ideal or expanded criteria kidneys. Qualitative, semi-structured interviews will cover topics including lived experience, shared-decision making, perceptions of less-than-ideal or expanded criteria kidneys, and recommendations for educational strategies.
Experience required
Participants to this study are kidney transplant candidates, recipients or caregivers from Indigenous and/or historically-marginalized communities such as Black or Asian.
Potential roles for PFD Partners
One-time participation in an approximately 45-minute long interview over the phone or videoconference link
Reimbursement
$30
How to get in touch
- Name
- Noemi Tousignant
- Job title
- Research Coordinator
You can also contact Noemi by email at noemi.tousignant.chum@ssss.gouv.qc.ca Interviews can be conducted in English or en français