Patient Engagement

Resources

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Inclusive Research Guidebook Partnering From Ethno-racial Communities.

Equity, diversity, and inclusion are needed to create impactful research.

Failing to incorporate equity, diversity, and inclusion in research can lead to lower quality research findings, systemic barriers, the continued exclusion of people historically not consulted, skewed research findings due t…

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Engaging patient partners in your CIHR grant application: Everything you ever wanted to know

Introduction of how to engaging patient partners in your CIHR grant application. 

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Engaging Diverse Voices in Systems Improvement Equity Oriented Model

The Engaging Diverse Voices in Systems Improvement (EDVISI) Equity-Oriented Model can help support organizations in adopting and embedding the continuous practice of ensuring meaningful and inclusive engagement of people with lived/living experience in system initiatives, with a specific focus on s…

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Inclusion, Diversity, Equity, and Accessibility (IDEA) Toolkit

This toolkit is for anyone involved in designing, conducting, and/or using health/social research/evaluation to help you learn about these concepts, how to apply them to your work, and provide suggestions for related training and resources for you and your project team.

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Understanding Research: Demystifying Basic Concepts of Research

Understanding Research is intended for patients, managers, clinicians, and any other stakeholders interested in research and collaboration with researchers. This website was created to

 
  • Help stakeholders understand and use a common research language
  • Enable research teams, patients, and member…
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Patient Engagement in Preclinical Laboratory Research

This website is a comprehensive one-stop shop, which offers valuable content for different audiences, ensuring that all stakeholders can actively collaborate and contribute to the advancement of research.

This website is dedicated to promoting and championing patient engagement in basic science an…

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Building Patient Partner Skills in Pre-clinical and Clinical Research Webinar

This webinar explores how to equip patient partners with the skills they need to contribute meaningfully to both pre-clinical and clinical research. Learn practical strategies, hear real-world experiences, and discover tools that support stronger, more effective patient-researcher collaborations. 

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Engage with Impact Toolkit

The Engage with Impact Toolkit was designed to help organizations evaluate the impact of their patient, family and caregiver engagement programs and activities. 

The Engage with Impact Toolkit has been developed as a series of 5 modules. Each module includes background information, tasks to comple…

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Public and Patient Engagement Evaluation in Health Research, Health Systems, and Policy

The Casebook of Public and Patient Engagement Evaluation in Health Research, Health Systems and Policy shares real-world examples and lessons from teams across Canada who are evaluating their engagement efforts. It offers practical tools and insights to help others plan, carry out, and reflect on e…

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2SLGBTQI Inclusive Care for OTDT – a new curriculum for healthcare professionals is now available

2SLGBTQI Inclusive Care for OTDT Healthcare Professionals is a free, virtual, interactive curriculum for organ and tissue donation and transplantation health-care providers. The aim of the curriculum is to expand health-care providers’ understanding and confidence in delivering inclusive patient-ce…

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Tri-Council Policy Statement: Ethical Conduct for Research

In 2001, Canada's three federal research agencies, CIHRNSERC and SSHRC, jointly created the Interagency Advisory Panel on Research Ethics (the Panel) as part of a collaborative effort to promote the ethical conduct of research involving human participants. The Panel develops, interprets and imple…

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Advancing Re(al)conciliation

Offered by First Nations University of Canada, Advancing Re(al)conciliation is designed to educate through truth-telling and inspire action. Learners will learn about how the past created much of our present experiences and situations, and how present knowledge and relationships can shape the futur…

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Evaluating the Impact of Patient and Public Involvement in Research

This jointly hosted online session included: What we mean by impact, things to think about when evaluating the impact of public involvement, the wider context, common challenges, and good practice​, Introduced four tools that can help you assess public involvement impact​

By watching this video …

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Critical Health and Racial Literacy training is for individuals serving the African, Caribbean and Black (ACB) clients in a healthcare setting.

The Critical Health and Racial Literacy training is for individuals serving the African, Caribbean and Black (ACB) clients in a healthcare setting.

This course will help healthcare providers understand and address the barriers ACB clients face when accessing services. Content is delivered through …

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A Resource for Patient Partners in Research about Letters of Support

This resource has been co-created by patient partners based on their own experiences related to Letters of Support. PXP has created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team. 

1. Reviewing some foundationa…

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How to Read a Scientific Paper

Co-Created by Dawn Richards and Jim Kempster with input from CIHR-IMHA PERA members

Scientific papers have a very specific layout. Often each journal that publishes papers provides authors with instructions about what sections should be included in a paper. Each section of a paper has its own purp…

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ACT Canada Webinar Series: Engaging patient partners in your CIHR grant application: Everything you ever wanted to know

Webinar presented by Maureen Smith & Andrea Chow about supporting patient partners in the CIHR grant application process. 

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How to Write a Plain Language Summary

Looking to make research more accessible? Check out this helpful resource from SPOR Evidence Alliance on crafting Plain Language Summaries (PLS)! This one-pager provides key tips for making research findings clear and understandable for all audiences

These proposed steps were developed by combinin…

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