Resources
Equity, diversity, and inclusion are needed to create impactful research.
Failing to incorporate equity, diversity, and inclusion in research can lead to lower quality research findings, systemic barriers, the continued exclusion of people historically not consulted, skewed research findings due t…
Recruiting Patient/Public Partners is essential for meaningful and impactful health research. These five practical tips will help you build strong partnerships, foster inclusive engagement and ensure that patient voices shape your research in a meaningful way.
Introduction of how to engaging patient partners in your CIHR grant application.
The Engaging Diverse Voices in Systems Improvement (EDVISI) Equity-Oriented Model can help support organizations in adopting and embedding the continuous practice of ensuring meaningful and inclusive engagement of people with lived/living experience in system initiatives, with a specific focus on s…
This toolkit is for anyone involved in designing, conducting, and/or using health/social research/evaluation to help you learn about these concepts, how to apply them to your work, and provide suggestions for related training and resources for you and your project team.
The PxP initiative is a hub for patient engagement in health research brought to you For Patients, By Patients. PxP is designed for patient partners and other individuals with lived experience.
PxP is entirely led by an international team of experienced patient and public partners. Their purpose i…
This website is a comprehensive one-stop shop, which offers valuable content for different audiences, ensuring that all stakeholders can actively collaborate and contribute to the advancement of research.
This website is dedicated to promoting and championing patient engagement in basic science an…
This webinar explores how to equip patient partners with the skills they need to contribute meaningfully to both pre-clinical and clinical research. Learn practical strategies, hear real-world experiences, and discover tools that support stronger, more effective patient-researcher collaborations.
The Engage with Impact Toolkit was designed to help organizations evaluate the impact of their patient, family and caregiver engagement programs and activities.
The Engage with Impact Toolkit has been developed as a series of 5 modules. Each module includes background information, tasks to comple…
In this video, research coordinator Caitlyn Ivany, of the Public and Patient Engagement Collaborative at McMaster University, interviews patient partner Maureen Smith about her work evaluating patient and public engagement in the INFORM RARE pediatric rare disease network.
Topics include:
The Casebook of Public and Patient Engagement Evaluation in Health Research, Health Systems and Policy shares real-world examples and lessons from teams across Canada who are evaluating their engagement efforts. It offers practical tools and insights to help others plan, carry out, and reflect on e…
Background: Engaging diverse populations is critical for designing effective healthcare initiatives. However, strategies for recruiting participants to ensure meaningful engagement, particularly among harder-to-reach groups, remain underexplored. This study examines recruitment approaches used in…
Provides tips and examples for using active voice, present tense, chunking, and other principles of plain language communication.
This Plain Language Thesaurus can help you improve communication of research to the public and communities.
It compiles words, phrases, and sentences commonly used in reports and provides plain language synonyms for these, including examples of how to use them in a sentence.
2SLGBTQI Inclusive Care for OTDT Healthcare Professionals is a free, virtual, interactive curriculum for organ and tissue donation and transplantation health-care providers. The aim of the curriculum is to expand health-care providers’ understanding and confidence in delivering inclusive patient-ce…
If you’re new to patient-oriented research, or simply joining a new team, these guides will help get your project started in the right direction!
SCPOR’s Onboarding Guide for Patient-Oriented Research (POR) Teams was co-developed with Patient Partners to address some of the important details to co…
In 2001, Canada's three federal research agencies, CIHR, NSERC and SSHRC, jointly created the Interagency Advisory Panel on Research Ethics (the Panel) as part of a collaborative effort to promote the ethical conduct of research involving human participants. The Panel develops, interprets and imple…
Offered by First Nations University of Canada, Advancing Re(al)conciliation is designed to educate through truth-telling and inspire action. Learners will learn about how the past created much of our present experiences and situations, and how present knowledge and relationships can shape the futur…
