Resources
This guidance has been compiled for a wide audience, but in particular it will be of value to:
Capacity for patient-oriented research means all partners – patients, researchers, health system professionals, policymakers, and more – are trained and working collaboratively towards the common goal of high quality health care and improved patient outcomes within an integrated learning health sys…
In patient-oriented research, research teams engage with partners with lived experience, or people with personal experience of a health issue and the health care received. This interactive “road map” focuses on engaging with partners with lived experience on a research team, outlining diverse activ…
The IAP² Spectrum of Public Participation is used to help identify the level of involvement for patient partners, which you will see defined in the description of each engagement opportunity. The level determines how patient partners are engaged and to what extent they can influence outcomes. Defin…
Access CIHR resources related to accessibility and systemic ableism
CIHR's Sex and Gender-Based Analysis (SGBA) in Research Action Plan ensures that health research in Canada leads to sound science and reliable evidence that effectively addresses biological (sex) and sociocultural (gender and other identity factors) differences between diverse groups of people.
The tool was co-developed with a large community of stakeholders (more than 100 people from 51 organisations), representing patient associations, industry, academics, researchers and external experts. You can use it for a patient engagement project that takes place at any point along with the medic…
This How-to Guide has been developed for anyone who needs to be involved in the implementation of Patient Engagement in the design of a clinical trial protocol. Specifically, this Guide has been co-created to:
Clinical trials play a pivotal role in advancing medical research and shaping the future of healthcare. However, for these trials to truly benefit everyone, diverse participation is essential. By including individuals from diverse backgrounds, including various racial, ethnic, socioeconomic, and ge…
These four videos are designed for patients, the public, healthcare professionals, students and more, who want to learn about systematic reviews and the main steps involved in producing a review.
hese modules were co-produced by Cochrane Crowd, Cochrane Ireland, and patient and public involvement …
This infographic has been created to serve as a quick resource to outline some common strategies you can use to share health research findings and activities with your intended audience to increase awareness and promote change.
This guide is a resource to support gender inclusive language in women’s health research. It discusses approaches to language and demonstrates the application of equitable language practices. This guide is not a Sex and Gender Based Analysis Plus (SGBA+) toolkit nor checklist, though the guide does…
This resource outlines recommendations to fairly and meaningfully work with people with lived and living experience (PWLLE). The resource addresses key issues related to employment, compensation and additional supports to ensure successful and beneficial engagement that centres PWLLE. There are man…
Co-designed by Community Engagement Specialists, researchers, and trainees, this resource supports meaningful community engagement in research, particularly when working with administrative data and equity-related research questions.
This guide provides guidelines and tools to support the launch of patient-oriented research collaborations. It aims to promote inclusive, collaborative, and trust-based working practices.
Patient engagement is attracting considerable interest as a potential strategy to improve the conduct of clinical trials, with evidence of significant improvement in research participant recruitment. However, impact on the retention and adherence of clinical trial participants requires further stud…
Equity, diversity, and inclusion are needed to create impactful research.
Failing to incorporate equity, diversity, and inclusion in research can lead to lower quality research findings, systemic barriers, the continued exclusion of people historically not consulted, skewed research findings due t…
